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The Moyamoya Contact and Support Group

Moyamoya patients at the Moyamoya Center and their relatives are organised in a support and contact group. The main objective of this group is to exchange experiences and information amongst those affected and to support each other in solving issues individual to every child and family – either in a group or on a one-to-one basis.

The Moyamoya group meets once a year. Each year new topics are addressed depending on the need and interest of all. If you are interested in joining us please let us know. Welcome!

Please email to: n.khan@moyamoya.net.

Moyamoya Parents' Forum

The parents in the Moyamoya contact group have set up a forum at forum.moyamoya.net for sharing information. Parents can talk to one another about every aspect of the Moyamoya diagnosis and their children's treatment. Join in the discussions and share your experiences with others in the same situation.

Go to Moyamoya Parents' Forum >

It should be noted that this forum was initiated by parents and is intended for parents. The material on it has been written by private individuals and not by medical experts. The forum can be accessed by anyone who has registered. You are therefore advised to submit your contributions anonymously using a pseudonym. You can create this yourself when you register. Each user is responsible for which information they wish to disclose and in what form. No responsibility is taken for the material on the forum and no liability is accepted.